Hi, I’m Tove, and I’m redefining what it means to live with multiple sclerosis. Together with you!
I never found a support space that felt right, so I created my own. My hope is that it will help others feel less alone than I did.
When I was first diagnosed, I desperately needed something like this. In 2020, I lost feeling on the right side of my body and ended up in the ER. A few weeks later, I got the news: MS. My only knowledge of MS was from TV shows, where it always seemed like a death sentence. I remember a scene from The Affair where the main character’s mom, who had MS, tried to take her own life but couldn’t even open a pill bottle because of her illness. I thought, “Is this what my life is going to be like?”
I tried looking for support groups online, but nothing felt right. And when I reached out for advice about treatments, the responses were so grim. It seemed like everyone had accepted the worst possible outcomes. There was also this noticeable gap in support and communication for women my age, making me feel even more isolated.
I’d been thinking about starting a community for people like me since 2020, but my health held me back until 2024.
It was time to be the change I wished to see, as the saying goes!
Whether you’re living with MS, know someone who is, or are just curious about the diagnosis, this is the place for you.
At Not Just MS, we believe life is more than just having MS. Yes, it can be tough, and there are days when it really sucks, but that’s okay. We still have to live, enjoy, and embrace every moment. We’re here to break the stigma that everything ends when you get diagnosed.
Got questions, suggestions, or just want to say hello? Whether you’re seeking advice, looking for support, or eager to share your own MS story, I’m just a message away! Reach out to me via email, social media, or the contact form below.
There’s a little bit of everything to keep you company, uplift you, and remind you that you’re not alone (and yes, there are plenty of cute dog pics too).
Life with MS
Read real-life experiences that come with MS, and connect with a community that gets it. We’re here to talk about everything from symptoms and work-life balance to the daily routines that keep us going.
Food
Good food is one of life’s great joys, and MS shouldn’t take that away from us. You’ll find recipes that are delicious and doable—even on tough days.
Fun Stuff
Join in on our “Let’s Chat” discussions and stay updated on social media trends that bring a little lightness to our days.
Health
Health with MS can be unpredictable, and some days are tougher than others. But we’re all about finding what works for us, whether it’s a workout or simply celebrating getting out of bed.
Stories
One of the most powerful things we can do is share our stories. Here, you’ll find personal experiences from people living with MS, their loved ones, and caregivers.
Style
MS doesn’t change who you are. Here, we’re all about expressing yourself, whether through fashion, beauty, or how you style your home.
Travel
Just because you have MS doesn’t mean you can’t explore the world. With a bit of planning and a lot of enthusiasm, travel is still very much on the table.
Relationships
Whether it’s love, friendship, or family, relationships are what keep us going. Here, we chat about the people who matter most and how we care for those connections, MS and all.
News
Keeping up with the latest in MS research, treatments, and global stories is crucial, but it doesn’t have to be overwhelming. We break it down into simple, exciting updates that keep you informed and hopeful.
Together, we’ll explore everything from health and wellness to style, food, relationships, and travel.
So grab your favorite drink, get comfy, and start reading!
Hi, I’m Tove, and I’m redefining what it means to live with multiple sclerosis! Together with you.
I never found a support space that felt right, so I created my own. My hope is that it will help others feel less alone than I did.
Got questions, suggestions, or just want to say hello? Whether you’re seeking advice, looking for support, or eager to share your own MS story, I’m just a message away! Reach out to me via email, social media, or the contact form below. Can’t wait to connect with you!